Update 3

Oh I am glad thats over-

you know when things are just going great and then you have a difficult moment that kind of wipes you out?

Well that we was me last night.

Really over all things have been great. Better than expected. But last night things got a little tense. I felt exhausted, and had a little emotional meltdown myself.

But now I think that I am a little more rested and ready to face the day.

We stayed an extra night up in Thousand Oaks- because the surgeon wanted to see us the next morning (thursday.) We had only packed for 1 night. (thank goodness I did pack extra dipaers!)

We went and saw Dr. Ozaki Thursday morning and he felt everything looked good. He talked a little more about future surgeries, and the possibility of this surgery not staying. That Luke would have great improvement on his breathing, but the "memory" of the skin, might lead it to dipping back down again. 

We drove back down to the Reeds (where we are staying) and have been able to unwind.

It is a constant thing, of watching Luke- keeping him from touching his nose, or trying to pick at it, or peel off the tape. 

The thing that Luke complains of is the itching. That is where his hands are the problem!

Wednesday night Jay and I took turns sleeping with him, and holding his arms to keep him from grabbing himself.  

Then last night Luke had a really hard time unwinding. Getting him to take his medicine. Him wanting to play in the bath, and put his face down in the water. Cleaning his face, and giving him his nasal spray. All of those things plus just the normal bedtime routine stuff, took all of our strength. The older kids were great, they just took care of themselves. And Tucker, well I just laid him down and he never made a peep. 

Luke finally settled down, and took a deep breathe. He asked if I would sleep with him. I said yes and he drifted off to sleep. He had a much better sleep than the night before. He startled less, and he did not seem to touch his nose as much. (or I just slept through it easier!)

About 4 A.M.- Jay came in and said that Tucker was getting sick. I went in and he had a fever, and had a barking cough. (kind of like croup ,hmmm.) I asked him if he hurt, and he put his hand up to his chest and throat.  We gave him motrin, and he settled back down.

So far this morning, he seems to be doing alright. He has a little wheezing but he us up playing and dancing around. (please, please let this be short lived, and contained to Tucker, and not the others)

We have not had the most reliable internet connections on this trip. That has been a little frustrating for me. I feel like there are so many things I want to remember and share. 

So I will keep typing them and post them when I have time. There have been some wonderful memories made, and some tough things too. That is probably what makes the good times so good.